Hugo’s parents Ollie and Brooke Long lived every parent’s worst nightmare when their baby boy Hugo was diagnosed with a fast-growing and highly aggressive tumour.
At only 11 weeks old Hugo was diagnosed with Atypical Teratoid Rhabdoid Tumour (AT/RT) brain cancer which is only found in children, mostly under 3 years old. It is a rare, aggressive and malignant disease with no cure.
The treatment options available can prolong life on average on 12-18 months.
Hugo spent 7 months undergoing high dose chemotherapy in hospital and battled the life-limiting side effects before passing away aged 21 months in April, 2024.
“The Hugo Long Sunshine Fund was established because no child should have to endure what our precious Hugo did in his short life.” – Ollie and Brooke said.
“We hoped for a miracle to save Hugo – our hope is now for a future where no family has to rely on a miracle but is supported by targeted life-saving treatments”
Hugo’s parents are committed to support more vital research into paediatric brain cancer, to develop new therapies & treatment options.
